Here is a list of useful information that provides some background to Orofacial pain. There is already a lot of information about pain available but this is the first site to link some excellent available resources for example the patient facing sites Trigeminal neuralgia association (TNA), the organisation for understanding cluster headache (OUCH ) who are already providing excellent information for specific and rare conditions causing severe facial pain.
The OFP website aims to link these resources and provide information on the more common orofacial pain conditions causing misery to many patients.
General links to other pain websites
- Patient choices toothache http://www.nhs.uk/Conditions/Toothache/Pages/Introduction.aspx
Post surgical wisdom tooth pain
Jaw joint pain
- Patient choice NHS http://www.nhs.uk/conditions/temporomandibular-joint-disorder/Pages/Introduction.aspx
- Patient UK http://www.patient.co.uk/health/temporomandibular-joint-disorders
Burning mouth syndrome
Post surgical nerve injury
- Trigeminal nerve foundation website http://www.trigeminalnerve.org.uk (sister site)
- Trigeminal neuralgia association (TNA) http://www.tna.org.uk
- Trigeminal neuralgia NHS choices http://www.nhs.uk/conditions/trigeminal-neuralgia/Pages/Introduction.aspx
- Trigeminal neuralgia patient UK http://www.patient.co.uk/health/Trigeminal-Neuralgia.htm
Trigeminal autonomic cephalgias
- Ouch https://ouchuk.org/
- Patient choice NHS http://www.nhs.uk/Conditions/Headache/Pages/Introduction.aspx
- Patient UK http://www.patient.co.uk/doctor/headache-pro
- Migraine trust http://www.migrainetrust.org/
- Migraine Action http://www.migraine.org.uk/
- Self help guide for chronic pain sufferers http://www.moodjuice.scot.nhs.uk/chronicpain.asp
- Tricyclic antidepressants http://www.patient.co.uk/health/tricyclic-antidepressants
- Pregabalin http://www.patient.co.uk/medicine/Pregabalin.htm
- Gabapentin http://www.patient.co.uk/medicine/gabapentin-neurontin
- Venlafaxine http://www.patient.co.uk/medicine/venlafaxine
- Duloxetine http://www.patient.co.uk/medicine/duloxetine-for-mood-and-nerve-disorders
- Oxcarbazepine http://www.patient.co.uk/medicine/Oxcarbazepine.htm
- Lamotrigine http://www.patient.co.uk/medicine/Lamotrigine.htm
- Baclofen http://www.patient.co.uk/medicine/baclofen-for-chronic-muscle-spasm-lyflex-lioresal
- Opioid pain killers http://www.patient.co.uk/health/strong-painkillers-opioids
Support for chronic pain patients
- Action on Pain www.action-on-pain.co.uk PO Box 134, Shipdham, Norfolk, IP25 7XA Tel: (Painline) 0845 603 1593. Action on Pain is a national charity, run by volunteers, the majority of whom have chronic pain, which provides support and information for people affected by chronic pain, either as a sufferer or a carer/relative. They are a strong lobbying organisation working hard to increase the provision of effective pain management services within the NHS and are an independent, non-political organisation focussed clearly on the key issues around pain management. They promote the positive side of effective pain management whenever possible in order to improve the quality of life for people in chronic pain. As well as the Painline they have a mobile information unit and an effective range of informative publications.
- Chronic pain coalition www.paincoalition.org.uk. c/o Policy Connect
CAN Mezzanine, 32-36 Loman Street, Southwark, SE1 0EH Tel: 0207 202 8585. The Chronic Pain Policy Coalition is a forum established in 2006 to unite patients, professionals and parliamentarians in a mission to develop an improved strategy for the prevention, treatment and management of chronic pain and its associated conditions.
- The neuropathy trust www.neurocentre.com PO Box 26, Nantwich, Cheshire, CW5 5FP. The Neuropathy Trust is a worldwide Charity and was founded in 1998 to provide a lifeline to people affected by Peripheral Neuropathy (PN) and Neuropathic Pain (NeP). It is the primary function of the Trust to ensure, irrespective of the cause of the peripheral neuropathy or neuropathic pain (whether known or otherwise) that patients, family, carers and health care providers receive the highest possible level of information and support. The Neuropathy Trust is independent of any government, political ideology, economic interest or religion.
- Pain concern www.painconcern.org.uk Unit 1-3, 62-66, Newcraighall Road, Fort Kinnaird, Edinburgh, EH15 3HS Tel: (Helpline) 0300 123 0789 (10 am-4 pm, Monday-Friday), (Admin) 0131 669 5951
- Information and support for pain sufferers, those who care for them and about them.
- Free factsheet and leaflets to help you manage your pain.
- Quarterly magazine.
- Listening-ear helpline - the chance to talk to another pain sufferer (see Contact Us).
- Online forum.
- An internet radio programme, Airing Pain, which includes Q and A sessions and interviews with patients and professionals
- Pain UK https://painuk.org/about/ Pain UK is an alliance of charities providing a voice for people in pain. We were founded in November 2011 and registered as a charity in January 2012. Since then, our membership base has grown rapidly and we now support charities dealing with all manner of painful conditions, from head to toe. Pain UK has four central objectives:
- To improve the efficiency and effectiveness of UK pain charities, thus helping them to improve quality of life for people in pain
- To secure general acceptance that pain is an issue in its own right, just as significant as the disease or injury that may be causing it
- To provide a signposting service for people in pain where help is available
- To highlight the need for support where it is needed
To achieve our objectives, we offer training and support to the member charities, many of which are run by ‘expert patients’ and may not have access to advice on issues like lobbying, fundraising, profile raising and reaching out to young people.
- International Headache society (HIS) http://www.ihs-headache.org/
- British pain society(BPS) http://www.britishpainsociety.org/
- European academy of craniomandibular disorders (EACDS) http://www.eacmd.org/
- International association for the Study of Pain (IASP) http://www.iasp-pain.org/
- Grunenthal change pain site for professional and patients http://www.change-pain.co.uk/
- American academy of orofacial pain (AAOP) http://www.aaop.org/
- British Association of Oral Surgeons (BAOS) http://www.baos.org.uk/Resources.cfm#2
- Temporomandibular Joint Association: http://www.tmj.org
- Royal College of Anaesthetists Faculty of Pain: https://www.rcoa.ac.uk/faculty-of-pain-medicine/
- British dental association
- International association of oral and maxillofacial surgery: http://www.iaoms.org/
- British dental journal: http://www.nature.com/bdj/index.html
- Dental update: http://www.dental-update.co.uk/
- NHS patients advice pain management, toothache, headaches, PHN, wisdom teeth http://www.patient.co.uk/symptom-checker
- Deep study https://research.ncl.ac.uk/deepstudy/
Online migraine diary